SEOUL, Feb. 13 (Korea Bizwire) – The Korea Disease Control and Prevention Agency announced plans on February 12 to enhance its medical expense support program for low-income individuals battling rare diseases. Rare diseases are characterized as conditions affecting fewer than 20,000 individuals or those that are hard to diagnose due to the lack of precise data [...]
RALEIGH, N.C., March 22 (Korea Bizwire) — PRA Health Sciences (NASDAQ: PRAH) announced today the launch of its Patient-Centric Trial Development Toolkit, available now to clinical development sponsors focusing on rare diseases. Developed by PRA’s Center for Rare Diseases in collaboration with PRA’s Rare Disease Advisory Committee (RDAC) and other patient stakeholders, the toolkit includes [...]
HONG KONG, CHINA, July 16 (Korea Bizwire) - There are between 6,000 and 7,000 known rare diseases, which share little in common beyond their infrequency. This represents both a medical and policy challenge, often resulting in those with rare diseases receiving suboptimal support. While individual diseases may be rare, their collective burden is significant. The Economist [...]